View Full Version : Update from DotMom (Julie)

10-20-2005, 08:12 PM
I just called Julie & finally got through.....she is so touched that we've been thinkin about her! DS is still fighting that fever, and has been, since Saturday night, receiving the expert attention of the Infectious Disease specialist at Ronald McDonald Childrens' Hospital at Loyola. They are trying to pinpoint the cause of the fever and it has proved a challenge, so he is on all kinds of anti-everythings.

When I spoke to her, she sounded really positive. A few of the staff were having a chinese food party for DS in the playroom. They do their absolute best there to keep everyone in their best spirits....they really are amazing.

She can still use our thoughts and prayers, so keep sendin 'em!!

10-20-2005, 08:14 PM
Thanks for the update, Kelly! ;) When you speak to her again, please send my :heart: and :pray:

10-20-2005, 08:38 PM
Thank you for letting us know.. Her ds is in my thoughts and prayers!!

10-20-2005, 10:44 PM
He (well the entire fam) will certainly be put on my prayer list; I was not aware of the illness...what happened?!

10-20-2005, 10:55 PM
:pray: :heart: :pray: :heart: :pray: :heart: :pray: :heart:
From Me to You DotMommy!

Jodie in ND

10-20-2005, 11:16 PM
Thanks for checking in with Julie, Kelly. Lots of prayers heading their direction tonight.

10-20-2005, 11:30 PM
:pray: :pray:
I will add my prayers to the list! I hope things are going well and am so glad that she is in good spirits.

10-21-2005, 01:26 AM
Oh no, what's happening? What'd I miss? ...Julie's son has a mysterious infection?

Julie, I'm praying for your son's health! :pray: All of the best to you all!

:heart: :heart: :heart: :heart:

10-21-2005, 08:20 AM
Thanks, Kelly, for the update. If you talk to Julie again, please tell how much we miss her and how hard we are all praying for her son and their family.

Kimmie, how is your son doing?

10-21-2005, 08:22 AM
Thanks, Kelly, for the update. If you talk to Julie again, please tell how much we miss her and how hard we are all praying for her son and their family. :pray:

Kimmie, how is your son doing? :pray:

10-21-2005, 09:10 AM
Well, my son is improving. Thanks for asking. I hope and pray that the same can be said for Julie's son very soon.

10-21-2005, 09:56 AM
:pray: to all.

10-21-2005, 10:37 AM
Thanks for the update!

10-22-2005, 02:03 PM
To dotmom: :heart: :heart: :heart: :heart: :heart: :heart: :heart: :heart: :heart: :heart: :heart: :heart: :heart: :heart: :heart: :heart:

10-22-2005, 07:05 PM
Hi Everybody!

I have tears in my eyes after reading all your notes!

I am home for a brief visit & to do a couple of loads of laundry, and to spend a little time alone w/ DD!! She has been staying w/ Grandma & Grandpa, and while that's really fun for her, she was ready to come home and see all of us.

DS was feeling considerably better today. When he (finally) woke up this morning, he sat straight up in bed, ate breakfast w/out me bugging him to keep eating, and hopped out of bed & over to the window when he heard the hospital helicopter getting ready to take off. I was astounded! And today was the first day where he wasn't sitting around huddled in his blanket.

My theory about what was going on is that he contracted a virus of some sort, the chemo was knocking out his immune system at about the same time, and that prevented him from efficiently getting rid of the virus. Today his white counts and hemoglobin were heading up, and thus, his body seems to finally be getting the upper hand on the virus. He still -- naturally -- doesn't have all the energy he needs, but the dr. said that if his fever stays down overnight, he *might* (maybe!) get to come home tomorrow!!! :pray:

Thanks *so much* to all of you for your prayers and support. You have no idea how touching it is!!!

Love to all of you ...

(p.s. I just checked w/ DH @ the hospital, and DS's temp was about 100.2 12 hours after his last dose of Motrin -- this is a *major* improvement. At it's peak, it was 104.)

10-22-2005, 07:07 PM
WHEW!! Good news! We'll keep up the good vibes going your way! :heart: :heart:

10-22-2005, 07:10 PM
:cheering: :heart:
I am so happy to hear that he is improving!
Much :heart: to you and the fam!

10-22-2005, 09:17 PM
Would Julies son like get well cards sent to him? Is that possible?
I would love to send him one.
The family certainly will be in my prayers. God Bless

10-22-2005, 09:22 PM
So glad to hear he's on the upswing Julie! :cheering:

10-23-2005, 01:41 AM
If anyone would like to send cards for Julie's DS or anything to me, pm me and I will give you my addy & Ill bring them to her at Loyola....OR, I can get them to her if she ends up able to attend the Illinois get-together next weekend!

10-23-2005, 07:36 AM
Julie, that is great news. I will continue to storm the heavens with prayers for all your family. :pray: :pray: :pray:

10-23-2005, 08:25 AM
Oh Julie, :heart: I'm so happy to hear that he's feeling a bit better! Let's hope that improvement continues! Best of luck, and I'll be thinking about you and your DS. :heart: hugs to you!

10-23-2005, 11:10 AM
Thank goodness his fever is going down. Glad to hear is is feeling a little better.

10-23-2005, 09:42 PM
Oh my goodness! I had no idea! So glad to hear that he's doing better. My family will add your family to the prayer list. {{{{{HUGS}}}}}

10-24-2005, 11:01 AM
~~~~ :balloons: WE'RE HOME!!!!:balloons: ~~~~

We got home last night around 5 pm. DS's fever broke on Saturday. As I was telling Kelly earlier, I was expecting this big dramatic, sweaty fever-breaking event, but it just gradually kept spiking lower and lower until eventually, it was GONE! (Thank GOD!!) The dr's never did decide what was causing it, but that's not an unusual thing with these kids on chemo. The weird thing is that he never really got "neutropenic" (same thing as anemic except it has to do w/ white blood cells instead of red). So, really, I think we were seeing a virus here, and because of his compromised blood counts, his body wasn't very efficient at recovering from it.

I can't tell you how it warms my heart to see all of these messsages out here!! You guys are the greatest. DS (and DD) know all about you guys, and they enjoy looking at your FO's and hearing about your families, etc. (Of course, I have to censor *some* stuff :lol:) Thank you so much for all of the prayers and cyber hugs!

Now one of my goals is to pack some meat onto DS's little body. He's always been on the rather thin side, but two years (combined total) worth of chemo have *not* helped him beef up any. His appetite is slightly better now that he's out of the hospital. If any of you have any ideas on foods or recipes that would be tasty to an 11-year-old boy, please let me know!!! Typically, he's not a terribly picky eater, but chemo does throw off his taste buds. He likes Mexican food, pasta, pizza, salad (which he can only have when counts are good), fruit, candy (of course), and junk food. We've tried every variety of nutritional drink (Boost, Ensure, Mighty Shakes) and he doesn't like any of them. They either taste like vitamins or they're too rich.

Well, I need to get rolling. We have to take our car in to get it's brakes fixed today; they sound *awful*. It is *really* nice to go and do something as mundane as this ... REALLY! I think I have a new tagline to add: "Most people really underrate normal." -- Me

10-24-2005, 11:10 AM

here's wishing you and your family positive warm fuzzies.

10-24-2005, 11:15 AM
I'm so glad to hear he is home! :cheering: :cheering:

Ice cream is nice and caloric :)

10-24-2005, 11:16 AM
;-) Thanks, Jodi!!!

10-24-2005, 11:18 AM
Glad to hear that DS is home..........I'll rack my brain for some recipes that might appeal to him..................... :heart:

10-24-2005, 11:19 AM
I'm so glad to hear he is home! :cheering: :cheering:

Ice cream is nice and caloric :)

Thanks, Kempy! Ice cream is always my fall-back, too. I brought some "Mighty Shakes" home from the hospital, and I'm going to "dilute" them with vanilla ice cream, etc to make them seem less rich. They are really pretty good, but I can see where he would feel like they're going to make him sick. They pack a lot of stuff into about 6 oz of drink.

I still have an afghan square for you -- never did get any others done. I missed your deadline, and that's really not a big deal to me, but I have nothing else to do w/ the square. So, I'll hopefully be bringing it to you on the 29th!! Yeah!! I can't believe you're coming all the way up here!

10-24-2005, 11:19 AM
PRAISE GOD ya'll are home and he is better! And that you are better, as well (being a mom...we worry a LOT!)! You all will continue to remain in our thoughts & prayers.
I'm sorry that I have no yummy recipes. I did think 'smoothie' when u mentioned ensure, etc. Perhaps ya'll can make some smoothies at home that he might like?!
:cheering: :heart: :cheering: :heart: :cheering: :heart: :cheering:
BIG HUG for all of you ;)

10-24-2005, 11:23 AM
Glad to hear that DS is home..........I'll rack my brain for some recipes that might appeal to him..................... :heart:

Thank you, Margie!!! I can't wait to see what you come up with!!

I really need to get off here ... I keep getting more notificaitons in my inbox. I need to just close the laptop here & run! :roflhard:

Rebecca ... just saw your post pop up @ the bottom of my screen. Thank you so much for your prayers & :heart: !!! You're such a good cheerleader! :lol:

10-24-2005, 11:41 AM
:cheering: :heart: :cheering: :heart: :cheering: :heart: :cheering:

10-24-2005, 01:52 PM
Back atcha, Kelly: http://static.flickr.com/31/55656794_782ad83c64_o.gif

I could sit here all day chatting with all of you!!! I need to get going, though. I've got to get my car in. Kelly- got your PM, but no time to answer right now. I'll try and get caught up later!!

10-24-2005, 01:58 PM
:cheering: :cheering: So glad things are back to "normal".

A tip on Ensure that you might want to try--mix it with flavored syrup and seltzer! Strawberry, chocolate, etc. Makes it less thick and more soda-fountain-ish.

10-24-2005, 08:35 PM
:heart: :heart: :happydance: :heart: :heart: :happydance: :heart: :heart:
So glad things are looking up!

On the recipe thing...I am a post gastric bypass gal (5 yrs) and my appetite in the beginning was so low that the smell of food really turned my stomach. But, my dietician at the time suggested if I couldn't get the ensure or boost down, to freeze it into an ice tray then run the cubes through the blender with a splash of skim milk and it made it nice and milk shake-like. I bet in his case a squirt of light chocolate syrup would help the taste a little. don't wanna over suger him, but it's a thought. I also ate hamburger gravy (not all the time of course). basically just browned groung beef and make your standard brown gravy from the brown bits after draining the fat. a little of that and some nice wam mashed potaties really felt good when i was sick as a kid and it was easy for me to eat when my "schedule" allowed for certain foods after surgery.
Just a tip... ;)

10-24-2005, 11:42 PM
Ingrid and Bink --

Thank you so much for the nutrition drink tips. I just read yours now, Bink, but I had read Ingrid's earlier & mentioned it to DS. He thought that the seltzer sounded like a great idea! These "Mighty Shakes" that we got @ the hospital are really quite good. They don't have that vitaminy taste like Boost and Ensure. The problem is that they are really, really rich, and it just makes him nauseous. So, I think cutting them w/ some seltzer or skim milk is a great idea!! I'll give it a try tomorrow. He is so thin, it's just scary.

Well, off to bed. Still tryin' to get caught up on my http://static.flickr.com/24/55835426_d686942ad5_o.gif !

Nighty night!