View Full Version : Need some cheering up...
12-14-2007, 07:28 PM
I won't bog down with details. But I have now been sick for over a year, beginning in October 2006. Wow. Can't believe it's been so long.
I went home from work sick, thinking I had a virus. That turned into three days of being unable to do as much as take a sip of water without feeling like I'd been punched in the gut. I lost 6 pounds in those three days, and I wasn't physically ill. It just... came off. The third day I got scared. I woke up with my heart pounding and racing. My doctor wanted me to wait a week to come in. I wanted in NOW.
Anyhow. It's been a year now, with more doctors appointments than I think I ever had before in my life. I've had every test imaginable, gone to see specialists... I dropped a good 40 pounds in about three months at the beginning. But it's been a year now, and I'm now waiting to see a new specialist. Been waiting a month or so already and must wait for March to get in.
A year that I have been miserable almost every day. For almost two months all I could eat were popsicles and I was completely full. I can eat more now... I was restricted to almost nothing when they were testing me. I was on so many medicines that bottles line the shelf.
But I'm tired everyday. And unmotivated. And 9 days out of 10 I feel miserable. Sick and miserable. I can't plan things because it all can change in a matter of minutes. And I feel horrible because I know I am no fun anymore. I just know it.
So today I'm looking at my first free weekend where I could have fun, and the last free weekend before Christmas. And I feel awful.
Guess I'm just frustrated and sad, is all.
12-14-2007, 07:32 PM
I'm so sorry! My dh has Crohn's Disease, and it can be very unpredictable.
I'm sure you have probably tried a lot of different things, but have you given homeopathy/healthy eating (what little you can do) a chance?
Jordan Rubin wrote a fantastic book titled The Master's Diet. It's terrific. Perhaps something in it would help you.
12-14-2007, 07:39 PM
Here's hoping this next year is good to you - best wishes this Christmas time
12-14-2007, 07:55 PM
12-14-2007, 08:09 PM
It's all I can do (pretty much... I cheat sometimes a little) is eat healthy. Nothing fried or greasy or with alot of fat in it. Of course, no greens, either (stomach can't handle it) or milk or chocolate for the most part. No fun foods (though I am much better considering... ) but I'm still just miserable. I wanna feel good, be happy.
12-14-2007, 08:17 PM
I strongly encourage you to give juicing a try. It's a wonderful way to get nutrients into your body without taxing your digestive system.
I know it must tough...especially this time of year.
12-14-2007, 09:39 PM
I'm so sorry you're not feeling good and that it's been going on for so long. It may not seem like it but you will get through this and it will be a faint memory some day. It took a long, long time to find the right treatment for my illness and there were times that I thought there would never be an end to feeling bad but then one day, the doctors found the right combination of meds and now I feel so much better. Keep the faith, hon. You will see the light at the end of the tunnel; right now you just have to believe! :hug: :heart: :hug: :heart:
12-14-2007, 09:55 PM
:hug: :heart: :hug:
I hope you get answers soon...and feel better soon....
12-15-2007, 12:27 AM
Just take it one day at a time. Feel better soon :hug: :hug: :hug:
12-15-2007, 02:37 AM
12-15-2007, 08:13 AM
Hang in there! Maybe 2008 will be your year!
12-15-2007, 08:55 AM
:hug: Good luck with this new Doctor. :hug:
12-15-2007, 09:12 AM
It sucks to be sick!! I hope they can figure out what is wrong with you soon so you can get back to enjoying life pain and ill free! :hug:
12-15-2007, 04:29 PM
So sorry to hear about your hard time. Juicing is an excellent piece of advice. It's too bad you have to wait so long, til March.
Perhaps you can gain some moments of peace here by looking around and learning new things. It really helps to get your mind off the troubles and concentrate on knitting things. I hope that's still possible for you.:heart:
12-15-2007, 05:15 PM
I'm so sorry that you have been having health issues. I hope that you will soon see a turning point and you will begin to feel better. :muah:
12-15-2007, 05:47 PM
Awww, I am so sorry! It can be so frustrating not knowing whats going on in your body. My boyfriend, last year, had a parasite and it took the doctors 11 months to figure it out. He was so miserable. You will be in my prayers. <3
Denise in Michigan
12-15-2007, 06:53 PM
12-16-2007, 10:05 AM
I'm sorry you're feeling so bad - it really sucks being sick long-term. I've been ill since I was 19, and spent 3 years in a wheelchair. I'm walking now, but I still can't work, and I hate it. It's easy to get bitter some days about where your life went, and let that happen for a little while - grieve for what's lost and what you miss, but don't let it take over. I hope you can find some peace at Christmas and enjoy the things you *can* do.
12-17-2007, 12:26 AM
Thank you, everyone.
I know my problems aren't as bad as what many others have. It just gets really frustrating, you know?
I was lucky enough to feel ok enough to go to the mall and see my friend's band play Christmas songs and went to eat at a local restaurant. AND I was lucky enough to not feel sick until I got home. Heh.
But really; thank you all. It means alot to me, all the good thoughts. :hug: :muah:
12-17-2007, 05:11 PM
Oh my goodness, I'm so sorry you are having to live with this! I hope you are able to find a name and a cure for your condition soon! Meanwhile, we're always here when you need a virtual HUG!
12-17-2007, 05:45 PM
My dh has Crohn's Disease, and it can be very unpredictable.
I have Crohn's, too. :ick: Chikky, I hope you feel better soon. It's trying to live with a chronic condition, both physically and emotionally. You're no doubt feeling tired from the small amounts of food you can intake. If you can tolerate some yogurt, that might be a way to get some protein; they say that yogurt is more digestible than other milk products. On days I can't eat, I try to push clear fluids like salty chicken broth (good for electrolytes), Jell-O, juices. Try to add something like Powerade or Gatorade to help with electrolytes. Maybe something like Ensure, Boost, or Carnation Instant Breakfast can give you a bit of nutrients, too?
The doctors haven't been able to find out what's going on??? Could it be Crohn's disease or ulcerative colitis? Some of what you're describing sounds a bit like Crohn's to me (but I'm not a doctor). Don't give up bugging the doctors to find out what is going on. Sometimes you have to keep on them so they don't forget about you. I hope you're feeling better and stronger soon. On the days when I feel yucky and am weak, knitting has been a godsend to me, as has reading. If you're up for it, try to work on some knitting, or play some upbeat music. You can PM me if you want. :hug:
12-17-2007, 07:31 PM
:grphug: Group Hug from us all, Chikky! I haven't suffered from the things you mentioned, but I have suffered from other stuff, mainly the aches and pains associated with the raising of 5 children. I shudder to think of the ups-and-downs my husband and I have weathered.
Well, here is my meager 2 cents worth: Life is hills and valleys. Every valley is surrounded by hills. As we walk through life, our path may take us into the valleys of shadow. The secret is this: don't lie down in the valleys, no matter how tired you feel. Keep walking. Keep placing one foot in front of the other, and eventually you will rise again!
I am kind of in a valley right now myself. Grown children can be worse than when they were children. I can't make them kiss and make-up anymore. A mother's greatest sorrow can come when the children that she loves don't love each other. I have 3 daughters who have no sisters. Such a shame.
Hang in there, Chikky, keep walkin', keep tryin'! Don't let this keep your spirit down! Your spirit makes all the difference to the restoration to good health, or at least, better health! :hug:
I'm sorry to hear that you've had such a difficult year. I hope you will have luck with the new specialist.
12-18-2007, 03:32 AM
I know what its like to feel like giving into despair..but DON'T DO IT!! hang in there and keep pushing forward:hug: :muah: . I have been suffering for 3 1/2 years with an unknown rheumatoid condition (sore muscles and pains in different parts of my body depending on the day and always my hands and wrists, making it so hard to knit..after a couple of knitted rows my hands feel like fire but I continue to fight against the odds and knit anyway because I love it so:teehee: ). I also have high inflammation levels in my bloodwork and IBS they do not know what the condition is and I have only seen them about 2 times a yearbecause "thats the best they can do they are specialist". They just keep ordering more and more bloodwork and finding out nothing. It is soo frustrating but to be completely happy one day and to feel fine it is SO worth the struggle to me.. I tell myself You will not give up:wink:
12-18-2007, 08:26 AM
I hope you can find some answers, and I pray things improve for you soon. :pray: :hug: