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View Full Version : OT: Endo surgery...UPDATE!


09-13-2006, 05:03 PM
Hi everyone, thanks for reading my life story here...I was scheduled for a laparoscopy tomorrow for my endo and I went for blood work this morning and my doctor called telling me the pregnancy test part came back a 6.

What does this mean you ask? I don't know. Apparently if its in the 0-5 range then it's negative but I got a 6. She doesn't know if I'm for sure pregnant. :??

Why you ask?? Well I got my period this morning!! (sorry if this is too much info) What are the odds of that!! I'm in full menstrual cramp mode as we read this. I'm supposed to go for another test on friday to see what's going on.

Anyone ever have this happen? Or am I again one of the few weird ones on this planet?? :rofl:

Secksiebrat
09-13-2006, 10:35 PM
Wow another endo sufferer, yay! Well not yay that you have endo, but..

I DO know that the endo can bleed on it's on and maybe that's causing a period. You can also have a period in the early stages of your pregnancy. Maybe your hormones are out of wack? I've never had that happen before any of my laps.

I'll keep ya in my prayers. I hope it works out for you one way or another!

If you ever need an ear, I'm here!

~danielle~

09-13-2006, 10:53 PM
Thank you Secksiebrat :heart: :heart: :heart:

I so appreciate your kindness regarding this issue. I'm sure I'm not pregnant (not that that would be a bad thing).

I didn't know that endo could bleed on its own?? That's awful. I learn something new everyday with this stupid disease...thanks again.

Witchy Mama
09-13-2006, 11:03 PM
when I was pregnant with my eldest I had light bleeding for 3 days when I was due to have my period, I just figured it was a light period and was relieved cause I have horrible one lol, when I eventually found out I was pregnant it was when I went to the dr because I had been feeling sick for 2 weeks turned out I was 9 weeks pregnant hehehe

what is endo anyway? I've never heard of it

09-13-2006, 11:16 PM
Endometriosis.

Here's a link (http://www.endometriosisassn.org/endo.html)

There are many websites that can explain. Hope this one helps.

Sara
09-14-2006, 08:36 AM
umm...my mom went in for blood work before her scheduled hysterectomy due to endometriosis in 1967 and found out that she was pregnant with me. I am lucky to be on the planet. :teehee:

I hope you hear good news! :heart:

fluffypechey
09-14-2006, 08:42 AM
Oh I have this too!!

Now when I was pregnant with my son I had bleeds monthly throughout the entire pregnancy. Mostly light for a couple of days used to worry me half to death.

I hope everything goes well for you.

Same here if you need to chat I am always about. I cant believe I have fellow sufferers on a knitting board :roflhard: sorry not laughing at this dratted disease just struck me funny on a knitting board.



:hug: Sharon

mrsfife
09-14-2006, 08:44 AM
This strikes a chord with me. Right now I am on hormones to help me conceive. If I don't get pregnant after 6 cycles, the doctors want to do an laparoscopy to check for endometriosis among other things. The funny thing is, I did get pregnant in January, had spotting, and missed my period in February altogether. But the foetus hadn't developed at all and by the time I took a pregnancy test in March, and found out I was pregnant, I started to abort anyway. They called it a blighted ovum.

Anyway, the short of it is, it is possible to bleed even when you are pregnant, it could be implantation bleeding. But not if it is heavy bleeding and cramping, of course.

Hoping the best for you.

fluffypechey
09-14-2006, 08:52 AM
mrsfife I hope you have good luck soon. :hug:


Sharon

mulene
09-14-2006, 09:11 AM
HI Doglover :hug: I really feel for you and all endo sufferers, I've not had it (but I had some symptoms which could have been it) I've known of people to continue to have periods through the first few months of pregnancy and not even know they were pregnant.

If you are pregnant congrats =D If you aren't then I hope you get the laperoscopy done in as painless and quick a way as possible.

Holly
09-14-2006, 09:55 AM
Here's another :hug: for you, Doglover. I'm 39 and had a complete hysterectomy approx 5 yrs ago after having endo problems for 15 yrs. In my case, we had to resort to invitro to conceive DS (age 10 :heart: ), after 10 years of various infertility treatments. I found a very informative and supportive website -- hystersisters.com -- when I was facing the hysto. It is a great place to get endo info and find out what treatments people are using, what is working for them, etc...

Good luck :hug:

PS - I had great relief from lupron shots at one time.

fluffypechey
09-14-2006, 10:17 AM
That is so interesting I have an appointment to see the specialist regarding a total hysterectomy soon. Although I am not worried as I have been very fortunate and had my two kids, its nice to have some different opinions.

Thanks

:hug: Sharon

09-14-2006, 10:47 AM
Holly,

I too had the Lupron shots last yr for 6 months. :heart: Heavenly :heart: No period for 6 months. No break-through bleeding. It was great then I went back on the pill for another 6 months and now I'm off of it (ttc) and the last few months, while still on the pill, I started having my endo pain creep back in and this month (yesterday & today) the pain is almost in full force. :waah: I hate this...that's why my doc. scheduled the surgery so quick (less than a week and a half), she's great.

Mulene,

It is a full blown period for me that's why I'm sure I'm not pregnant. It's not light at all. So.... :shrug: I keep reading different sites and one says you can have a reg. period for a few months and be pregnant and some other sites say, no, you can't have a period. If you do have bleeding it'll be light. Not the case for me.

As for the blood test I've read the the HCG levels are usually higher in the beginning to indicate you are pregnant and mine's a 6, so...I'm just screwed up on my insides. :wall:



Mrsfife,

I'm so sorry for your loss. :( :(

Pixywhispers
09-14-2006, 11:11 AM
Hey Doglover,

I have never dealt with endo, but I sure feel for you. :hug:

I have felt that uncertanity of not knowing. With my now three year old, my pregnancy tests didn't come back positive for weeks after they should have. All the blood tests said I wasn't but I was! When the numbers finally showed up they were sky high and they thought we were having twins. But it was just one wee baby. :) Numbers can be funny. So thats the experience I've had with crazy numbers.

Spotting and bleeding during a pregnancy is more common then we think, and sometimes it is a threatened miscarriage.

I wish I understood endo better and why it would give that number. I just dont know.

rebecca
09-14-2006, 11:16 AM
I'm so sorry to hear that you are going through this. I had severe endo and all sorts of other gorey things going on for some time, then it really kicked in and escalated full force and i ended up having a hysterectomy before I was 40...I will say, for me, it was the best thing ever...ah, if only my hip replacements had been so successful.

I will certainly be praying for you! And, please, please keep us updated!

09-15-2006, 03:39 PM
Here's an update:

No baby. My surgery is rescheduled for next friday...

A little disappointed, but not too bad. I really want this stuff out of my body so it was meant to be.

Thanks for the support. :heart: :muah: :muah:

rebecca
09-15-2006, 03:46 PM
I will certainly continue to pray for you. Please remind me about the type of surgery you are having, is it a hysterectomy. forgive my forgetfulness :oops:

Mo0nAngel
09-15-2006, 04:07 PM
Well gee i've been reading some of the symptomps of endo and I think I may have that :( I dunno...I'm super irregular with my periods sometimes 2 or 3 months can pass before I get it, and before I do get it I have cramps and pains and I feel sick...when I do get it I get terrible pains, i can't get out of bed and I also get the gastrointestinal upsets...and the painful urination and the painful bowel movements as well.....this is great...:S

09-15-2006, 04:10 PM
nope, its a procedure where they go in through my bellybutton (1/2" incision) and they use a gas to inflate my insides so she can see if and where the endometriosis is and when she finds it she'll make 2 more incisions in my lower abdomen and burn it off.

I prefer to call it 'gutting my insides' of this stuff... :teehee:

Mo0nAngel
09-15-2006, 04:20 PM
aww well hope everything goes well with the surgery!! I will be praying for you and the others as well! :)
I was just looking at the website..and i seem to have all but 2 of the and symptoms they have listed and now i'm worried....how did you(or the others that have it as well) start suspecting that you had endo??

earthchick
09-15-2006, 04:21 PM
Hugs to you, Doglover. I hope the surgery goes well.

rebecca
09-15-2006, 04:45 PM
Big, big hugs your way!!!!
I've had that surgery and it wasn't bad at all. I hope that you do well :muah: And it takes away all of your pain and problems :muah:

Pixywhispers
09-15-2006, 04:52 PM
Oh Doglover :hug: . I'm sorry. I am also standing in prayer asking that this is an effective surgery and that the Dr's hands are guided throughout, also that you and your family are taken care of in a most respectful way by all. If there is anything else you need specific prayer for please don't hesitate to ask. :hug:

fluffypechey
09-15-2006, 06:03 PM
Oh I am sending you a big hug and would like to wish you good luck for your surgery. I am sure you will be fine and like you say get the 'stuff' out.
I am waiting for a hysterectomy and I cant wait to be honest to be relieved of this pain and misery.

Praying for you and healing thoughts too.

:hug: Sharon xx

09-15-2006, 06:56 PM
Thanks you guys, you are awesome!! :muah: :muah: :heart: :heart:

MoOanAngel,

I started with severe cramps since my first period 20 years ago. So for me it was just 'normal' to feel that way. My mother told me that she and my aunt had bad cramps and they went away after they had children. :roll: She never questioned my pain. That kinda irritates me but what can you do when people are ignorant and you're an adolecent. I'll never forget that day for as long as I live. It seems like yesterday that it happened. Lying on the couch rolling in pain, nothing helped and Ibuprofen wasn't known (at least in my house) as a cramp reliever. :verysad:

It wasn't until last April when we went home for my brothers wedding and my sil's friend who stood up in the wedding with me asked me if I had it. (I had just gotten my period when we went home so I was miserable) I couldn't even stand during the rehersal, I had to sit in a chair. :oops: I felt so stupid. But when I told her my symptoms she told me about her experience and that she too had a laparoscopy.

That's when I went to the library and did some research on the disease and realized that I had it. I told my doctor and she started me on Lupron shots and that helped soooooo much and she said that since the Lupron worked that I 'probably' had it, and now we're onto the surgery as it has returned. :verysad:

The amazing thing is that the women who have the most severe pain end up having little to no endo and the women who have little pain usually have the most endo. Now that's not true in every case, but from all the things I've read, it just seems to be that way... :roll:

Mo0nAngel
09-15-2006, 07:33 PM
Thanks you guys, you are awesome!! :muah: :muah: :heart: :heart:

MoOanAngel,

I started with severe cramps since my first period 20 years ago. So for me it was just 'normal' to feel that way. My mother told me that she and my aunt had bad cramps and they went away after they had children. :roll: She never questioned my pain. That kinda irritates me but what can you do when people are ignorant and you're an adolecent. I'll never forget that day for as long as I live. It seems like yesterday that it happened. Lying on the couch rolling in pain, nothing helped and Ibuprofen wasn't known (at least in my house) as a cramp reliever. :verysad:

It wasn't until last April when we went home for my brothers wedding and my sil's friend who stood up in the wedding with me asked me if I had it. (I had just gotten my period when we went home so I was miserable) I couldn't even stand during the rehersal, I had to sit in a chair. :oops: I felt so stupid. But when I told her my symptoms she told me about her experience and that she too had a laparoscopy.

That's when I went to the library and did some research on the disease and realized that I had it. I told my doctor and she started me on Lupron shots and that helped soooooo much and she said that since the Lupron worked that I 'probably' had it, and now we're onto the surgery as it has returned. :verysad:

The amazing thing is that the women who have the most severe pain end up having little to no endo and the women who have little pain usually have the most endo. Now that's not true in every case, but from all the things I've read, it just seems to be that way... :roll:

Thanks so much!! i totally know what you mean about people not understanding the pain one goes through(I always tell my mom how I should get checked but she ignores me :S she'll just say sure and thats that)...but i'm really concerned about my periods because i'm so irregular(I get them every 2 or 3 months), and i've been irregular since day 1, but I get cramps about a week or 2 weeks before I get my period, I get terrible pain and cramps and the rest of the symptoms when I have it, and it lasts the full 7 days, and sometimes after the period i get cramps.. :S and nothing works with me either, I was given ponstan on one occassion and midol on another occassion and both pills just exacerbated the pain making me tremble like crazy and dizzy...maybe I should get checked up...I'd just hate to find out that I have endo or something else...

fluffypechey
09-15-2006, 08:30 PM
Mo0nAngel you should get checked. I left mine and by chance found it out. I had a dvt clot on my leg. They took a blood test and said I was severely anemic and when perscribing the warfarin were worried about my bleeding. So sent me for a scan and found it out. I could have had the hysterectomy a couple of years ago avoiding all the problems and pain.

I would definately get it checked out. They may be able to help you and prevent some of this pain.


:hug: Sharon

EssenceRose
09-15-2006, 08:49 PM
Oh my... it sounds like you are going through a very trying time. I admire your courage and strength so much. For you, it's probably just something you are used to dealing with but for me, it's an incredible feat of courage!

I wish you all the best on your surgery. I'm sorry that you are not pregnant after all... does having this affect your fertility at all? You'll be in my thoughts. Here's wishing you lots of luck on the surgery and a speedy recovery!

susanc
09-15-2006, 08:55 PM
Hi there! I, too, suffer from endometriosis. I was diagnosed with it at 20. I've had two laparoscopy surgeries; they weren't too bad. My cramps and the horrible pain that I suffered with for so many years, being on Danocrine and pain-killers, has gotten significantly better now that I'm older. Thank God! I went through hell every month with horrible pain to the point that I would be doubled-over in pain. Even had a few trips to the ER before they figured out what it was.

I'll be thinking about you. It will be good to get this taken care of and you'll be feeling better. :muah:

09-15-2006, 10:07 PM
EssenceRose,

As far as the fertility goes, it really depends on the person. Some women with Stage 4 endo (that's the worst) have gotten pregnant prior to surgeries...so it is possible. But all of the books say that it does cause infertility.

Especially with those women who have it on their tubes and ovaries preventing them from ovulating. I'm not sure if it's causing infertility with us/me. Only because this was the first month off of bcp's. I'll find out next friday. I really wish I could have had it yesterday, but I guess there's a reason I wasn't supposed too... :verysad:

Mo0nAngel,

Yes, definitely go to the doctor. It took me 20 years, well, 19 before I went and got help. I've always been a 28-day cycle girl. Only one time was I late 9 days, no clue why. I have the terrible cramps, bloating beyond belief, this month my back hurt (strange :?? ). I also have this awful pain in my mid-abdomen. It is so hard for me to describe to anyone its just this ache that won't let me stand for any short/long period of time. And the yucky one, my bowels. It's like someone is knifing me in the stomach. Ugh, sorry for TMI. :oops: This goes on for 2 days.

I'm just one of the lucky ones whose doctor actually listens to me. She talks quite fast, :teehee: but she is the nicest lady.

I'm the one who asked to have the surgery before my next cycle and she was all for it, didn't try and talk me out of it at all or try pushing pills or something else on me.

geekgolightly
09-15-2006, 10:32 PM
im so sorry that you have to wrestle with this disease. my friend sunny http://www.sunnycrittenden.com/Docs/AboutMe.html suffers from this and she has had it pretty rough.

it sounds like you have an awesome doctor, though which is a blessing. i wish you strength for your surgery and a speedy recovery!

Eloewien
09-15-2006, 10:35 PM
I completely undertstand. Docs thought I had endo, and I had a 4cm cyst that had to be drained laparoscopically, so they checked while they were in-- no endo. I started the 13 wk cycle pill-- Seasonale-- and it greatly helped my cramps. They're still around, but tolerable most of the time. That and 4 times/yr is much easier to deal with. We want to have children in the next 5 years or so- but then I'm on to a partial hysterectomy. Too many problems run in my family- mostly cancer. It's better to be safe.


Laura

Amber
09-15-2006, 11:13 PM
:hug: I hope everything goes well with your surgery!

dustinac
09-16-2006, 09:03 AM
:heart: :hug: hope you feel better soon

09-16-2006, 11:51 AM
:muah: :muah: :heart: :heart: :hug: :hug:

Thank you so much everyone.

To quote a line in the movie Hope Floats...

:heart: :heart: My Cup Runneth Over :heart: :heart:

Mo0nAngel
09-16-2006, 07:32 PM
thanks so much for the advice!! :) Let us know how the surgery went!! :)

09-23-2006, 07:17 PM
Hi everyone. I'm still alive, but in quite a bit of pain. I had my surgery yesterday morning and YEAH!!! I didn't throw up at all! :cheering: :cheering: All that worrying for nothing. I had 3 incisions one just under my belly button and two in the 'lower' region, if you will. TMI, I know, sorry. :aww: The belly button one hurts like a bit#h. That's why I can't sit up for too long of periods.

She did find some endo, I'm not sure how much, I get to see pictures at my post-op on the 4th. She is the world's best doctor. She held my had while the anethstesiologist was poking my hand with needles. What kind of doctor does that?? MINE! :cheering: :heart:

She did say I had some on my appendix. :?? Who knew it could grow there. I hate this disease.

I just wanted to let you all know that I'm hanging in there and hope to be back on the boards in a few more days. It's kinda painful sitting up for even a short amount of time. So I'm off to my comfy bed...bye.

dustinac
09-23-2006, 07:22 PM
I'm sorry your in such pain and hope you feel better soon.. take it easy and rest.. :heart: :hug:

thats so nice that she held your hand!! when I was having my little girl I was more afraid of the spinal than the c-section.. my dr came in and held my hand while they did the spinal and repeated the Lord's prayer with me... its always nice when you have a dr that cares..

Ingrid
09-23-2006, 07:29 PM
:hug: :hug: Take care of yourself!!

psammeadred
09-23-2006, 11:11 PM
Many hugs, prayers, and cups of homemade chicken soup to you! I hope you feel better soon!

Jan in CA
09-24-2006, 12:27 AM
Hope the pain lessens soon and that you feel better!

fluffypechey
09-24-2006, 07:33 AM
Oh I am so glad everything went well. Sorry you are in pain, make sure you take the pain relief pills. You shouldnt be in pain if you take the right stuff. I know I am in pain everyday but if the right meds are taken it goes away (or makes it bearable) please dont suffer :hug:

Let us know how the recovery goes. Stay in bed and be waited on :teehee:

:muah: Sharon and a gentle hug.

09-24-2006, 11:27 AM
Thank you everyone :muah: Today I'm feeling much better. I'm walking quite a bit more erect! :rofl: I even shaved in the shower. :woohoo:

I'm wearing my 'mother' pajamas. It's a nightgown so nothing touches my tummy. :teehee: I never wear these, they were a gift and now they have come in quite handy.

I'm so glad I had this done, even though it hurts like a mother...at least I should be pain free or less pain free for maybe 6 months to a year?? Here's hoping.

My hubby has been soooo wonderful. :heart: Taking care of everything, bringing me food at 3 in the morning so I can take my meds. What a sweetie.

I'll see ya later... :heart:

rebecca
09-24-2006, 02:02 PM
I'm so happy to hear that surgery went well :cheering: I've been praying for you, and will certainly continue to do so :wink: Sorry about the pain, but that will lessen as time goes on, praise God! I hope and pray that this surgery is 100% successful and you will be pain free for a great long time :cheering:

stitchwitch
09-24-2006, 02:21 PM
Glad you're feeling better! :cheering: I'm way overdue for something similar due to fibroids. I've been putting it off for years. and every month I say no more but somehow I keep chugging on. Hopefully you'll be sympton free and back to health soon!

mks22300
09-24-2006, 04:57 PM
I'm so glad that everything went well and that you are on the road to recovery! :hug:

Nikki
09-24-2006, 05:39 PM
Gentle hugs, feel better soon
Nikki

Jeremy
09-25-2006, 10:26 AM
I hope and pray that you have a speedy recovery. Best Wishes, Jeremy

mulene
09-25-2006, 10:36 AM
:heart: :heart: :hug: :hug: glad to hear it went well - hope you recover well and fast and here's to 6mos - 1 year of pain free time =D :muah:

09-25-2006, 01:39 PM
and here's to 6mos - 1 year of pain free time =D :muah:

:woohoo: :woohoo: :woot: :woot:

Secksiebrat
09-25-2006, 04:51 PM
I'm behind on this post, as usual :)

I'm glad to hear your surgery went well! Did they remove your appendix since it had endo on it? Mine actually went "bad" when I was 16 (I'm 24 now) and now looking back, I really believe it was the endo that caused it to go bad and that was the start of all my problems. I wish I would of had an autopsy done on it now.

Endo can grow anywhere in the body. I know ladies that have it on their diaphram. It's horrible!

Here is a link to a website that I belong to that might be of interest to you!
http://groups.msn.com/EndoFaeries You will need to join the group, but these ladies are wonderful and can answer any questions you might have or just be there as support :)

If you ever have any questions or need to vent, feel free to email me or whatever. I haven't had a surgery since 2002 and my endo is now back, not as bad as it once was, but it's back. My son just turned 2 on the 11th, so I'm greatful for all the time I did have where I didn't hurt!

*big hugs to you*

~danielle~

09-25-2006, 06:16 PM
Did they remove your appendix since it had endo on it?

No, she didn't remove it, she came in the recovery room for a couple of minutes, but I was too groggy and OOOhhhhhhh sooo sleepy. :teehee:

I have my post-op on the 4th, next wednesday I believe and I'll get to see the pictures and ask her about that. From what I remember and what my hubby heard I had it in 3 places she couldn't remove. One of them being my appendix.

I did think about that too, removing my appendix I mean. I'll have to ask how bad it was and if it'll end up having to come out. We'll see I guess.

I have read that it can grow anywhere, but that just seems wrong that the body allows that! Rude!!

Thank you for your well wishes. :heart: