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View Full Version : Not sure I will ever knit again! Update, I'm getting better.


Indygirl
12-25-2008, 05:51 PM
I have had sinus problems for a very long time.
I went to a E.N.T. Dr. about 3 mo's ago. He put me on 'Levaquin'. I took 7 pills and he had me get a refill of 7 more. After I took most of the refill I had very bad side effects.
Both of my upper arms are so messed up. I went back. He put me on steroids for a week. I still can't use my arms for much of anything repetitive. I hurt most all the time. If I don't use them much it is a little better.
I am wondering if anyone on here has any sugestions.
I didn't get anything knitted up for christmas. I have all this yarn. I hope this is not a permanent situation. :waah:

suzeeq
12-25-2008, 05:58 PM
First, let your doctor know about the side effects, you probably need to be on another medication. Even if you didn't knit and use your arms like that, that sort of pain isn't something to put up with.

ecb
12-25-2008, 07:07 PM
I agree, U need to be sure that ur problems are being taken seriously
not something for "pain" something to find and fix the cause
I am going through something similar, but until next month, I wont have insurance
But this is about your problem, not mine
keep us appraised, and have them explain everything they can

ecb

Indygirl
12-25-2008, 09:46 PM
I have let the Dr. know about my arm and shoulder problem's. That's when he put me on the steroids. He told me that the pain would go away in time. I have read up on that 'Levaquin' medicine. It can and does cause inflammation, sometimes permanent damage. He did x-rays on my sinuses the first time I was in his office. He also want's to do surgery on my sinuses. I hurt so bad right now with my arms I'm not letting him do anything else to me. I can't do much of anything right now. I do a little and then rest.
My daughter just became a nurse. She keeps telling me it should get better in time. With her being new at the job, I'm sure she still has a lot to learn. I won't mind if it just means I need to take it easy for a few mo's. I would be so sad if I had to give up knitting completely.
Thanks for your replies.

RuthieinMaryland
12-25-2008, 09:56 PM
Hi, Indygirl! :waving:

My heart really goes out to you! It's amazing what side effects some of these so-called wonder drugs have! I don't know if the doctors prescribing them really take the time and attention to inform themselves of the effects these drugs can produce and they certainly don't tell their patients. It's left to us to figure it out from the tiny print on the sheets that come with the meds.

There's an ad on TV for a drug for restless leg syndrome (whatever that is) At the end of the ad the narrator says, very quickly, to let your doctor know immediately if you experience uncontrollable sexual, gambling or other urges. Pleeeeeeeeze! Someone could find herself arrested for accosting strange men in casinos and the judge would never believe it was a side effect of prescribed medication for restless legs!!! This is so NUTS!

So whatever medicine the doctors prescribe for you, make them sit there and go over the potential side effects with you so that you understand the risks and can ask questions. You DO have a choice about this.

And please try to keep your spirits up. Although your knitting arts are sidetracked a bit now, that won't always be the case. We're all rooting for you, girl!

Let us know how it's going...

Hugs :hug:

Ruthie

Marria
12-25-2008, 10:13 PM
Indygirl-I'm so sorry about what you are going through. :hug: I have some experience with chronic pain that comes and goes and I really recommend you see your regular doctor and try to look at other possibilities. If this keeps up, ask to be referred to a pain specialist. I see one and he's really helped me. Good luck to you.

heatherg23
12-25-2008, 11:35 PM
I WISH I just had sinus problems.....I'm so jealous:(

ladyjessica
12-26-2008, 02:57 AM
My doctor prescribed me Levaquin about a year ago when I had pneumonia. I only took it for about a week and was told not to finish it because it gave me terrible pain and stiffness in my knees, legs, and ankles. I'm sure it wasn't quite as bad as your situation, and it didn't take quite as long, but the pain did eventually go away.

I know everyone's situation is different, but I'm praying that this eventually clears up for you and you're able to resume your life again. :hug: :hug:

CountryKitty
12-26-2008, 03:57 AM
My husband had the same results from Levaquin. It took a week or 2 to realize what was causing the pain and over a month in his case for the pain to go away. Please do contact your doctor about the pain--he may think that since you didn't come back the problem was solved, and there may be more he can do for you.

All meds have certain side effects--most people get great benefits from the meds with minimal problems, but a certain percentage do have difficulties. Sadly, so many bacteria have developed tolerances to the gentler antibiotics that they have become almost useless--so doctors have been forced to move on to the more powerful medicines...that have potentially more dangerous side effects.

Knitting_Guy
12-26-2008, 12:53 PM
Wow, sorry to read about your side effects. You definitely should continue to follow up with your doctor. I hope it improves soon.

auburnchick
12-26-2008, 01:07 PM
:hug:

I'm so sorry for the issues you're having with your health. Steroids can be just as dangerous as other medications.

I don't know if you have a health food store near you, but if so, I would recommend that you make a visit to it. I am a firm believer in homeopathic treatments. They can take longer, but they are so much better in the long run.

Hugs to you, my friend.

ArtLady1981
12-26-2008, 05:54 PM
I wear magnetic bracelets on both wrists all the time, and a pliable magnetized wrist wrap to bed. I can knit with the bracelets very easily. I wear the wrist wrap to bed on whichever hand is bothering me (usually the right hand) during times when repetitive stress syndrome is bothering me. It really helps. Non-invasive, no pills, no side effects.

NIKKEN products> virtual catalog>pages 22 & 23 for bracelets
and pages 28 & 29 for elastomag hand wraps.
http://www1.nikken.com/virtualCatalogs/Catalog_US/index.html

Private message me if you have any questions and/or if you are interested in giving magnetics a go. My DH and I have been using NIKKEN sleep system as well as the magnetic insoles, hand wraps, knee wraps, etc. for over 15 years. They are incredible.

LilHuskiesFootBallMom
12-26-2008, 08:57 PM
Sounds to me like it's time to get a second opinion. I also have sinus issues, but I deal with it as it comes.... Get a second opinion and see what's what after that.

Rabbitrescuer
12-28-2008, 11:11 AM
I agree with Auburnchick about homeopathic remedies. I used to have chronic sinus infections until I started taking Fenu-Tyme. I used to get an infection every couple of months but I haven't had 1 since I started taking it several years ago.

Marria
12-28-2008, 01:41 PM
Another thing you might try is a neti pot (http://www.healingdaily.com/exercise/neti-pot.htm)or some kind of system to wash out your sinuses with saline. It sounds really gross, and it took me awhile to build up the strength to do it, but when I had a bad sinus infection that just would not go away, it really helped.

margz3
12-29-2008, 02:23 PM
Another thing you might try is a neti pot (http://www.healingdaily.com/exercise/neti-pot.htm)or some kind of system to wash out your sinuses with saline. It sounds really gross, and it took me awhile to build up the strength to do it, but when I had a bad sinus infection that just would not go away, it really helped.

My son saw a specialist for his sinus problems and has also used this, with alot of success

KnitTogether
12-29-2008, 02:27 PM
Oh, I am so sorry to hear you are having these problems, that's got to be painful physically and mentally. My sister got repetitive problems in her forearms from working at a factory, and nothings seemed to be able to be done. She used to love crochet and plastic canvas. She just absolutely couldn't do it anymore - but now she has totally gotten into scrap booking and making these small trading cards and all sorts of greeting cards - it has given her an outlet for her creativity where she can use stamps and ribbons and all sorts of other decorative things on her cards but it doesn't give her the forearm pain. It is some sort of tendonitis type thing but in the forearm instead of the elbow. I think it is called 'radial tunnel' (as opposed to carpal tunnel). Anyway, very painful she says. Sometimes constantly even if she is not using her arms. :(

miccisue
12-30-2008, 08:43 AM
I know EXACTLY where you're coming from. Last month I had an ear infection and went to the doctor. I'm allergic to penicillin, so she gave me Levaquin. I read the pharmacist's insert to get an idea of what kind of side effects it could have (I always do that - I tend to be really sensitive to medications. For example, I've got plantar fasciitis in both feet and in the early stages the podiatrist put me on an anti-inflammatory. After the first day, I had horrible heartburn. He took me off that and prescribed Celebrex, which was supposed to be less likely to cause that side effect....um, wrong. I use aspirin for pain - sometimes Tylenol, but that doesn't seem to do as well as plain old aspirin) and thought there wasn't anything that looked too bad in comparison to the ear infection. After 3 days I took myself off of it (4 days before I was supposed to see her again). The first thing I noticed was my left elbow being very tender. I thought it was because after hubby put the eardrops in my right ear, I'd just fallen asleep on that arm and slept wrong so I didnt give it a lot of thought. 2 days after that, my forearms were so sore I couldn't lift anything. That's when I got the sheet out again, and sure enough, one of the "rare" side effects is tendinitis or a possible rupture of a tendon. I stopped the medication right then. When I went back to see her, I told her what had happened, and she said I was only the second person in 8 years that had complained of that.

My forearms are fine now, but the elbow still bothers me, and I've noticed my knees are giving me more problems than they used to if I sit for any prolonged periods (like to knit). I'm still thinking time will work that out, too.

Hang in there, it will get better. It just takes time to get the stuff worked out of your system. The best advice I can give is to just rest the muscles involved as much as possible, and if it really doesn't start to get better, get in touch with the doc and see if there's someone else you can see about the tendinitis. You definitely don't want to be messing around with permanently injuring them!!

Take care!!!!!!!!!

Indygirl
12-30-2008, 09:33 PM
Hi all, Just an update. I went to the health food store last week. I got some 'Glucosamine & Chondroitin' It worked for Tennis elbow a few years back. I am also trying some 'Floradix Magnesium' supplement for the nerves around my neck and head. Also I have a friend in from Florida, she does 'acupressure'. She has worked on me about 4 times this week. Just today I could feel the heat and pain moving out of my shoulders some. It is a lot better. I'm still sore but not nearly as bad as I was. I won't be knitting anytime soon. I don't want to get another flare-up. I will wait until it is completely gone before I knit. I do feel I'm on the mend though.
I will never take 'Levaquin' again. I will also ask about side effects before ever taking a drug again.
WOW! What an experience....
I decided to try homeopathic treatment. I have been in so much pain & the Dr's said they did not know anything else to do for it. And FYI the acupressure feels great, even if you don't have a serious health problem to solve.
Happy Knitting & Happy New Year.

miccisue
12-31-2008, 08:39 AM
Hi all, Just an update. I went to the health food store last week. I got some 'Glucosamine & Chondroitin' It worked for Tennis elbow a few years back. I am also trying some 'Floradix Magnesium' supplement for the nerves around my neck and head. Also I have a friend in from Florida, she does 'acupressure'. She has worked on me about 4 times this week. Just today I could feel the heat and pain moving out of my shoulders some. It is a lot better. I'm still sore but not nearly as bad as I was. I won't be knitting anytime soon. I don't want to get another flare-up. I will wait until it is completely gone before I knit. I do feel I'm on the mend though.
I will never take 'Levaquin' again. I will also ask about side effects before ever taking a drug again.
WOW! What an experience....
I decided to try homeopathic treatment. I have been in so much pain & the Dr's said they did not know anything else to do for it. And FYI the acupressure feels great, even if you don't have a serious health problem to solve.
Happy Knitting & Happy New Year.

Just a note....contact your doctor and have them put an entry in your file that you can't take Levaquin, in case there would ever be a time you'd need someone to know and weren't able to tell them. I know, I know, people are going to say files never get read, but I figure it can't hurt to have it recorded and on file. I know my doc pulls out my file everytime I go to see her, so she's obviously meticulous enough that she does go through the meds/reactions, etc. If you've already done that, sorry for my thinking it might have slipped your mind.:aww:

Marria
01-01-2009, 02:33 AM
I've never been prescribed Levaquin myself, but it sounds like a lot of people here have had serious problems with it. I think that a lot of times drug companies rush to get their medications to the market and they really don't do adequate studies. However, you can report problems with medications to the FDA here:

https://www.accessdata.fda.gov/scripts/medwatch/medwatch-online.htm

It sounds like it might be worth your time to do this.

Indygirl
01-01-2009, 07:58 AM
Marria, Thanks I did use this site to report my problem.https://www.accessdata.fda.gov/scrip...tch-online.htm (https://www.accessdata.fda.gov/scrip...tch-online.htm)
I have been told, it could take up to a year for this to go away. If it ever does!!
I'm getting a little impatient with all this. I know some people are a lot worse off then me, that doesn't change the fact that I would like to be able to use my arms and shoulders for more that 2 min's at a time. I know, I sound like a big baby SORRY :-)

Knit4Fun
01-01-2009, 09:09 AM
I'm so sorry to hear you are going through this...and it is NOT complaining or whining to want to have full use of your arms for everyday tasks and knitting! It's completely understandable how frustrated you are...I would be too.

It sounds like you have told your doctor about your pain. If it were me, I think I'd keep talking to the doctor about possible alternatives or at least keep him/her updated to the fact that it is NOT getting better. Doctors are good at what they do, but sometimes we forget that they serve a LOT of people and unless you keep in touch with them about your side effects, results and such, they don't know what's going on and thus cannot be expected to help.

There's got to be a way for you to get the relief you need without such drastic side effects. I am praying for your health and that you are soon pain free. :hug:

Indygirl
01-01-2009, 09:37 AM
I'm so sorry to hear you are going through this...and it is NOT complaining or whining to want to have full use of your arms for everyday tasks and knitting! It's completely understandable how frustrated you are...I would be too.

It sounds like you have told your doctor about your pain. If it were me, I think I'd keep talking to the doctor about possible alternatives or at least keep him/her updated to the fact that it is NOT getting better. Doctors are good at what they do, but sometimes we forget that they serve a LOT of people and unless you keep in touch with them about your side effects, results and such, they don't know what's going on and thus cannot be expected to help.

There's got to be a way for you to get the relief you need without such drastic side effects. I am praying for your health and that you are soon pain free. :hug: Thank You very much. I do know and believe in God's healing. I have gone back to work for a while. It is a repetitive movement I do with my arms. It's not a hard job, but I do move my arms back and forth all day. I have turned in my notice. I have two more weeks to work. I am then not working at all. I had already retired sometime back. I was doing a little extra for extra spending money. I took two weeks off a couple of weeks ago to give my arms the rest I thought they needed. They do get some better when I don't use them much.
I keep thinking of all the things I wanted to knit up. I guess that can wait though :wink: I have just been worrying that I might not ever be able to knit again. I'll bet I have at least $5,000 in yarn in my stash :aww: and that's a low estimate :teehee:

Marria
01-01-2009, 03:03 PM
I think I may have said this before, but if your regular doc won't do anything about the pain, ask to be referred to a physical medicine doctor, also known as a physiatrist. Here's an explanation of what that is from the website of the doctor I see:

http://idahopmr.com/what_is_physiatry.php

He has helped tremendously with my chronic pain (from 2 car accidents and a bad fall).

miccisue
01-02-2009, 08:52 PM
Marria, Thanks I did use this site to report my problem.https://www.accessdata.fda.gov/scrip...tch-online.htm (https://www.accessdata.fda.gov/scrip...tch-online.htm)
I have been told, it could take up to a year for this to go away. If it ever does!!
I'm getting a little impatient with all this. I know some people are a lot worse off then me, that doesn't change the fact that I would like to be able to use my arms and shoulders for more that 2 min's at a time. I know, I sound like a big baby SORRY :-)

If you don't mind my asking, who told you it could take that long to clear up? I know I didn't take the medication as long as you did, since I quit using it the second day I started having problems with my forearms. They're OK now, but the elbow (the first pain site I noticed) and my knees still are achy. I'm wondering if it could take me that long to get back to normal, too.....
Thanks!!!!!!!!!

Indygirl
01-03-2009, 11:00 AM
If you don't mind my asking, who told you it could take that long to clear up? I know I didn't take the medication as long as you did, since I quit using it the second day I started having problems with my forearms. They're OK now, but the elbow (the first pain site I noticed) and my knees still are achy. I'm wondering if it could take me that long to get back to normal, too.....
Thanks!!!!!!!!! Miccisue, When I called the E.N.T. Dr's office about my problem. I talked with a nurse. She checked on it and called me back. She said if it was a severe type side effect, It could take up to a year for all the symptom's to go away. I'm in hopes that's not the case with me :-)

whipstitch
01-03-2009, 09:52 PM
My husband got better as soon as he got off Levaquin and on to a Z-pack. The drug company must be pushing Levaquin hard because it doesn't seem to have a very good track record with patients. Whatever this sinus bug is that hit everyone this year, it's especially nasty. Hope you feel better soon!

Indygirl
01-04-2009, 09:58 AM
Whipstitch, Glad your husband is better:woohoo: Mine on the other hand is an on going sinus problem, had it for years.
Dr. is wanting to do surgery on my sinus. I guess I have had an injury at some time in my life that has messed up my sinus drains. He showed me my xrays of how close together they were. He said that's why I couldn't breath out of that side and it gets stopped up and infections get started. I might have that done down the road. I feel like I need to get this problem with my arms and shoulders cleared up first. When I do have my sinuses taken care of, It won't be that Dr. I have do the surgery :pout:
BOO :grrr: to Levaquin!!!!!!!

Mariblue
01-06-2009, 12:45 PM
Indygirl, I'm sorry to hear about all the trouble you're having, but thank you for sharing your problems here! I have chronic sinus issues, but thankfully have never been prescribed levaquin, though now I know not to take it!
My sinuses are really small, and I have allergies, which get me all plugged up, and then infections start, it's just terrible. Someone from my church recently told me about this nasal spray she found at the health food store, Nutrabiotic Nasal Spray (http://www.nutribiotic.com/nasal-spray.html). It's got grapefruit seed extract in it, which is a natural antibiotic.
Anyway, I love this stuff! I was on an antibiotic that just did not kill the infection I had, and was about to go back to the doctor for a stronger one, but was resisting because I really don't like taking too many antibiotics. That nasal spray helped so much, and all the infection was killed off in about a week. It was awesome.
I know you've got issues with sinus drainage, but wanted to tell you about the nutrabiotic spray. Maybe it could help?

beaniacle
01-06-2009, 05:34 PM
I had sinus surgery a few years ago after antibiotics, antifungals, and decongestants did nothing to help my chronic sinus infections and pain. One of the bones in each side of my sinuses was filled with air, causing an obstruction. I felt better almost immediately after the surgery (I could actually breathe through my nose!), and my recovery time was only about a week. My throat was actually more sore from the breathing tube used when they operated, than my nose/sinuses were from the actual operation.

I hope your pain goes away, and I think you should seriously consider the surgery once your arms feel better.

Indygirl
01-06-2009, 07:06 PM
Beaniacle, Thanks for your concern about my health problem. After my arms and shoulders are better, I am going to get the surgery on my sinus. The Dr. said it was an in office type surgery he would be doing on me. He showed me the x-rays. He said it looked like sometime in my life I had been hit in the nose. It has pretty much closed up that one side. no drainage or breathing from that side I guess.
BTW. I tried to knit two rounds on a sock I was knitting on before this all took place. The top of my arms hurt so bad. I had to put it back away for now.
happy knitting

Indygirl
01-06-2009, 07:08 PM
Mod's, do we need to move this thread? Not sure if It should be in this topic.

KnittedRose
01-07-2009, 11:12 AM
I'm so sorry to hear of your reaction to this med. It sounds awful, not being able to knit makes it even worse. I would suggest asking your Dr. to put you on some other medication. Sometimes I wonder what the FDA is thinking when they approve some of the drugs that are out there. I wonder how they would feel about this drug if one of them was experiencing the arm pain you are? Hope and pray things are better for you soon.
KR

Indygirl
01-23-2009, 10:08 AM
Well, My arms and shouldes are some better now. I have started to knit a little, I can't do much at a time though. I had a pair of socks on the needles for my D.D. for Christmas. I already had one finished. I had the other one down to the heel flap. I have knit about 1/2 in' at a time. I have about 1 in' to go before starting the toe now. If I knit for very long my arms and shoulders start to hurt and burn again.
When and if I get these finished I will post them on here.
I'm getting so impatient about not being able to use my arms much. If I do much cleaning they stat up again. I've been doing it anyway though. Someone needs to do it. I don't have any choice in that matter :gah:
Hopefully soon I'll be back to knitting full speed again.

Indygirl
02-05-2009, 10:44 PM
Just to let everyone know. My arm's and shoulder's are getting better each day. Today I knit about 4 or 5 in' on a scarf and it didn't hurt. I'm so excited I could just :happydance: :happydance: :happydance: :happydance:
I'm trying to not overdo at first. I put the socks away. I think those were harder to work with than anything else. I tend to pull the yarn tighter when knitting socks.
:woot: cloud9 :woot: cloud9 :woot: cloud9

Marria
02-05-2009, 10:46 PM
That's awesome! I'm so glad you have been able to knit again without pain. :hug:

globaltraveler
02-06-2009, 05:30 AM
Hooray! So glad to hear it. Smart not to overdo it at first!

losnana
02-06-2009, 08:28 AM
Glad you're feeling better. Please don't overdo!!

sgtpam
02-06-2009, 09:36 PM
GOOD NEWS! :woohoo:

I know it's hard to stop when you finally get going again...but, like the others said.....DON'T OVER DO IT!:hug:

knitkid11
02-06-2009, 09:49 PM
Trust me don't worry! My Grandma has the same problem and she is still knitting! That is amazing! She trys and trys again. She still has problems with it like sewing. Then again she keeps trying! Even if I am young I encourage you!:woot: :cheering:

Phedre
02-07-2009, 06:14 PM
I too was prescribed Levaquin for an infection from a kidney stone. My blood platelet level dropped to a very dangerous level. I was in the hospital for two weeks. I feel your pain. I have recently had tremendous results working with a doctor of Traditional Chinese Medicine. And I mean a real doctor of CHinese medicine. Someone with years of study and experience. It may take longer than Western medicine but the results are dramatic. I wish you all the best.

yarncharmer
02-07-2009, 09:49 PM
I'm so glad to hear you're doing better!! :cheering: :yay: :woot: