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-   -   Fibro/Chronic Fatigue Friends (http://www.knittinghelp.com/forum/showthread.php?t=85489)

Hsiaokuo62 11-10-2008 12:39 PM

Fibro/Chronic Fatigue Friends
 
Hello! I'm Laura and I'd like to start a thread for mutual support and encouragement for folks like me with fibromyalgia/chronic fatigue. This thread is for positive talk and encouragement, as well as understanding support.

I'm a knitter and I love KnittingHelp.com! I love the community and the fact that I can get an answer to a knitting problem almost immediately, since there is always someone "on" looking at the help threads!

I have found that my "fibro-fog" interferes with working on some of the patterns I crave - sometimes I am able to follow the directions, and other times I just forget and can't seem to understand - and I'm talking the same project! :teehee:

But then I just work on the easy stuff until my ability to count etc.. returns. I have one project which is still on hold waiting for my smarts to come back! It is a multiple cable vest, where the cables crisscross each other - counting and following a chart is a must.

Anyway, if you have fibro and/or chronic fatigue and would like to build a friendship system online, please reply!! :waving:

auburnchick 11-10-2008 04:34 PM

I was diagnosed with Fibromyalgia when my children were young. My symptoms were very severe at first but have gradually eased off. I wonder, though, if you're ever truly "cured" of it. I tend to forget that I've had it but then am reminded when I get the strange aches.

I appreciate your "fog" comment. It was a reminder to me that this is part of it. I often feel strange...like it's not normal; however, for this condition, it is.

Nice to "meet" you. I look forward to others' posts in this thread!

:hug:

cdjack 11-10-2008 05:00 PM

Another knitter here with fibromyalgia :waving: I'm lucky- mine comes and goes. Unfortunately, the fibro-fog is always here, though.
We moved back to Texas from Michigan a few years ago which is when my fibro started become more manageable.

Hsiaokuo62 11-10-2008 06:06 PM

Hi!
 
Hi Auburnchick and CDJack! Glad to meet you! Do you guys want to share what works for you, what has helped? Sounds like both of you have recovered, at least to some degree, which is SO encouraging!

Here is a start on my favorites...
  • Warm baths
  • I wear scarves any time of the year that I need them (I used to think they were for decoration!) In summer I use silk scarves or knit my own from silky/cottony sock yarn. My neck is often so COLD!
  • I found some awesome stuff for energy - its called "Corvalen" and is available several places online. I take it with Fibroplex pills (made by Metagenics) and today someone at the gym complimented me on my energy!! :blooby: Now THAT makes my day!
:heart: Laura

cdjack 11-10-2008 07:15 PM

I do warm baths as well. As soon as it gets to be about 60 outside, my feet are freezing and don't really thaw out until mid-spring. I also love Therma-care heat wraps.

I also make sure that I get as much sleep a night as possible. And I try not to drink much alcohol. This past weekend, my dh and I went to his family's lake house. I didn't sleep well (not enough sleep on an uncomfortable bed) and I had two glasses of wine. My entire body felt like one big bruise all day Sunday and today.

I also do pilates. And I try my hardest not to eat processed foods.

I'm definitely not cured, but now I'm lucky to only have one really bad "fibro-attack" a month. However, it usually hits more often during the winter months. I think Holiday stress has something to do with it.

Hsiaokuo62 11-12-2008 11:06 AM

Today
 
Good Morning :muah:

Today I am outta here really fast, and at present am making haste slowly... I have a mtg in Phoenix at noon, 3 hrs drive from here (I'm in flagstaff AZ) and I have to drop my dog off at the kennel, since I won't get home til latish.

We have snow on the peaks! It snowed here a few days ago, but melted in town. This morning does not seem so cold, but the computer says its 25* :teehee:

How about we introduce ourselves a bit more fully soon? I don't have time this morning but hope to tomorrow. I have invited several friends from a list serve I'm on, since this is such a user-friendly interface.

Have a great day!
:heart: Laura

auburnchick 11-12-2008 02:55 PM

Ok...my name is Nathalie, and I live in Florida. I have two children. My daughter will be 17 in January, and my son is 14. Both are in high school. I've been married for 19 years and have three dogs and one rat. We had two rats, but one passed away a few weeks ago. I'm presently hunting for a teaching position. I went back to school a couple of years ago and finished up my bachelor's in the spring and walked in my commencement ceremony this past June. Good stuff, I tell you, although I'm stressed because I'm subbing, which does not pay the bills. I love subbing but think the pay is ridiculous.

What helped me, in the beginning, was Coenzyme Q10 and magnesium with malic acid. One thing I learned about Fibromyalgia is that calcium gets trapped in the muscles, and the magnesium/malic acid combination helps release it.

Exercise is also extremely important, even though it is so hard to do when you're sore and tired.

I was good about eating healthy but have done poorly lately. I used to juice and still try to do a ten-day juice fast once a year. I'm considering a juice fast for Lent.

Ok...talk to y'all later! My planning period is just about over!

cdjack 11-13-2008 03:03 PM

My name is Courtney and I live in Texas. I've been married for a little over eight years and we don't have any kids... yet. I have to put that "yet" in there to appease my mother and mother-in-law. :teehee: I teach a beginning knitting class, help out at my lys, work at the library, and sell baby clothes.

I was diagnosed right around the time that I got married. Hmm... wonder if that's just a coincidence... It took a while to get diagnosed because I was just 25 at the time. Drs kept telling me that I was too young to have it. My mom was in her mid 40's when she was diagnosed.

Nathalie, I did take magnesium for a while and wasn't feeling any different. Maybe I should start it up again and give it longer to start working. You know, when you feel lousy, you want it to start working yesterday.

Hsiaokuo62 11-13-2008 06:28 PM

bio
 
Hi Nathalie and Courtney,

My name is Laura and I am 51. Iwas diagnosed 2 years ago but I think I have had fibro always. My sister was never diagnosed but I believe she had it, really a very severe case too. Which makes me mad and is one reason I am a one-woman ad campaign to get recognition and understanding of fibro/chronic fatigue.

I have 3 kids, they range in age from 26 to 21, and are out on their own. I have a dog, Holly, who is my close companion :teehee:

I am going through a divorce right now, my second... which is stressful, even though its the best thing in the circumstances.

I am a registered dietitian and I focus on FM/CFS in my work. I work for myself but am looking for a "regular" job too to provide more security. I'm hoping to find one where I can continue to help people with fibro.

I have had a heck of a couple of days... could use your good vibes sent in my direction! I'm going to go to Atlanta next month to get a workup form a specialist clinic there, and I'm really hopeful..(did I already post that before?) but right now my brain fog is frustrating the heck outta me. Just doing "normal' things is really hard -m driving, paying bills, juggling finances...:whoosh:

Even regular computer stuff is just too much for me. So hopefully tomorrow wll be better!

Interesting what you say about Magnesium helping get the calcium out of muscle cells. I take fibroplex which has magnesium, malic acid and manganese, and some Bvits - I do think the malic acid is essential. Probably just plain magnesium is not enough.

Talk more soon :waving:

Hsiaokuo62 11-16-2008 06:35 PM

Sunday
 
Hi Fibro-Friends :waving:

Hope you are having a good day. I added back short-acting guiafenesin a few days ago, which I had stopped back in May when all the !@#@$%#^& was hitting the fan - not sure if you guys are familiar with guai? Dr. St. amand (author of What Your Doctor May Not Tell YOu About Fibromyalgia) is the one who develpoed the protocol.

Anyway what happens with both long acting and short acting is that in the short run it makes symptoms worse but in the long run you get better and better and lots of people have gotten completely better. If you want more info just ask, I won't go into a long song and dance in this post :blooby:

So have had a few mild indications that things are moving - and have decided a few things. In fact, yesterday I took myself in hand and developed a new plan :yay:

I usually have intensified symptoms in Autumn (even though I really love Autumn!) so it is a good time for me to simplify and gear down. So that is the main objective of my plan. As an extrovert I really like to be social, but right now I'm not gonna - mainly stay home and take care of myself. Soon, I hope, I will have a "real" job, so now is a good time to hang at home and get home stuff done, gently though! No over-achieving.

I have heard that people with FMS/CFS tend to be over-achievers, and the Teitelbaum book really goes into it... he describes ME to a T. So thats a good place to begin - with self-acceptance, and no judging of self OR others, and no judging ourselves when we catch ourselves judging! :roflhard:

Love to all - have to stop typing, my left hand is zinging me!


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