I have pustular psoriasis. The type I have is limited to the palms of my hands and the soles of my feet with a small amount of plaque psoriasis developing elsewhere. I've had it for a long time but didn't know what it was until about 10 years ago when it began flaring up bad enough to cripple me. I was on Raptiva (not really recommended for the pp variety of psoriasis) but I had a systemic outbreak of plaque psoriasis while on it. So, the doctor has put me back on Soriatane.
However, now I am having other problems associated with pp. I have pain so bad in my chest, arms and back that I feel like throwing up. Even with NSAIDs (non-steroidal anti-inflamatory drugs), I can't sleep at night because when even think of rolling over, I end up crying in agony. Taking naproxin helps but the naproxin makes the psoriasis worse. Catch 22. My dermatologist is now recommending that I see a rheumatologist and he also wants to put me on Humira to try and control the progression of what he says is psoriatic arthritis. Having done the research and having experienced many of the other symptoms that I have found while researching, I've actually had PSa for awhile now and it has finally gotten bad enough that I'm desperate to try almost anything.
It even hurts to type...
But even though it hurts, I still knit, I still crochet and I still got to various meet-ups cuz I wouldn't have it any other way!